1. a spiritual being believed to be an attendant or messenger of God
2. a person who is kind, pure, or beautiful
3. A kind and lovable person.
4. One who manifests goodness, purity, and selflessness
This past weekend I met an angel, the most beautiful precious little girl I have ever met. The first time her perfect brown eyes connected with mine I fell in love with her. Although I have loved her since she was born, nothing is stronger than to hold her, soothe her and feel her love radiate from within her tiny body. Abby was born about a month after our little Remi so until this past week our love has been from photographs and stories. Not one photograph or story comes close to describing how special she is. Her curls dance like ringlets of gold when she moves as if she were flying gracefully through the sky. But it is that look of pure innocence so mesmerizing that leaves you speechless.
As most of you know, a few months ago Abby was diagnosed with Metachromatic Leukodystrophy (MLD) a rare fatal disease that attacks the white matter of the brain.
Although her time on this earth will be short, we must empower her parents Leslie and Hugh (Carl’s brother) as well as her big sister Hailey (4) with the strength, courage, love, and support to enjoy every moment possible with her. As a mother, I understand the tremendous love you have for your children, but I can not begin to image how Leslie feels. She is by leaps and bounds the most courageous, loving mother and hero that I have ever known and Abby is so lucky to be surrounded by such amazing love.
As Hugh and Leslie face the most difficult decisions and moments of their lives let us all reach out to them and truly touch an angel.
We are in the process of setting up a trust (thanks, Christi Neroni you are so wonderful) to help them through the miles of road ahead. We will be sending more information shortly. We have also just acquired http://www.weloveabby.org/ and anticipate that site will be up and running soon.
Our Trip & Abby’s 2nd Birthday/Grandma Dorothy’s 90th
It was such a joy to be in San Francisco with all of the family last week and to go to Aunt Carol’s Birthday Party for Abby’s 2nd and Grandma Dorothy’s 90th birthdays. On our first day we drove up to the top of Mount Diablo, and Zane and Remi had a blast playing king of the castle. We were a bit jealous as cyclists peeked the final crest of the mountaintop successful and anxious for the descent. Carl and I would love to ride to the top, another fun challenge to add to our list. We then visited Carl’s grandma Dorothy. What a treat, she entertained the kids with balloons and laughter in her new home. Zane and Remi enjoyed her company, and she seems very healthy and in great spirits. Her only complaint is quite humorous “I just hate being around all these old people.” She had no idea that the next day she would be surrounded by tons of toddlers screaming and playing.
We went to Hugh, and Leslie’s and Carl’s mom Pat just arrived from South Carolina. We enjoyed a beautiful evening in the yard with the kids. Zane and Hailey hit it off and had a great time together. I was scared Zane was going to destroy the yard and house, but we managed to make it through the visit without injury to him or the surroundings.
The next day Hugh and Hailey came over to play in the pool at our hotel and then we were off to the birthday party. The kids met their cousins for the first time, and they all ran around playing and enjoying their freedom to eat snacks and go wild. Zane, of course, went on his typical hunt for a flashlight. Aunt Carol and John threw a party and served a fabulous dinner. The renovations Hugh made to their home turned out great.
I was very pleased with a couple of pictures I took with our new Canon Rebel XSi as I learn how not just to point and shoot. I love this picture of Hugh and Carl and Grandma Pat and Dorothy. Now if we could just get them all together in a photo. That will be a task for me next time. As always, all of the photographs are accessible via our photo sharing page to the right. I would be happy to email the .jpg’s to anyone as well.
Unfortunately, we woke up the next morning and it was time to return to Pittsburgh. We did sneak in a few minutes to drop by Hugh and Leslie’s to give last minute kisses and hugs on our way to the airport.
A trip like this reminds you that nothing is more important than family. We must treasure every moment as if it were our last.