So I am home from the hospital and Thursday night in complete agony, on pain medication just like in Philadelphia. All night I am just miserable and then spend the morning throwing up. Carly and I are sitting in our bedroom wondering what is going on. If the doctor’s theory is right, this would not be happening again. We started thinking about any other changes I have made, and as I take eat another heaping spoonful of frosted mini-wheats, Carl says “MINI Wheat.” I never eat wheat don’t like the taste of it, and I have been eating these like candy for the past month.
Carl runs downstairs and learns about a gluten allergy and even more significant Celiac Disease. The symptoms of celiacs are exactly what I am experiencing. So I call the GI doc’s, and they are going to get me in the office sometime next week and then call the PCP. The head of our primary care practice says if I can get up to Zelienople in the next 15 minutes he can see me. Of course, I run up there, share with him all of my hospital nightmare’s and then begin apologizing for the attempt of a self-diagnosis through the Internet. He stopped me and said that he is glad I realized the change in my diet and that he thinks Celiac Disease makes a lot of sense.
No treatment can cure celiac disease. However, you can effectively manage celiac disease through changing your diet.
So from that moment forward I must be 100% gluten free, not 99% but perfectly free to see if I start feeling better. Gluten is not only in breads but lipsticks and envelope glue. In his office I was doubled over in pain and my stomach and ab’s look like I am carrying another baby. He mentioned that gluten is in everything but I couldn’t believe how correct he really is…..oh my….everything. My friend Dana is just so awesome, she has a gluten free diet and hooked me up with lots of food to try. I made the mistake of trying graham crackers first and honestly believe they are just like our dog treats.
It is now Monday morning and this is the first morning in just about two weeks I was able to take the kids to school. What an amazing feeling. Every day since Friday I have felt better and better. My PCP believes that in 72 hours I should feel results becuase the gluten would be out of my system. Yes….we already did the math, and he is right. Although having a gluten free diet will be a tremendous challenge and endeavor for me, I CAN handle it. I am really hoping now that we did find our answer. I can take a blood test but it is not necessarily accurate so another endoscopy will be needed to biopsy my small intestine. It is very hard to confirm this disease but the pain disappearing quite frankly is test enough for me.